OK, so the majority of information is in the post below this. I didn't have time to post everything else after we got home...so here it is.
The doctor was pleased that the tumors in Bobby's lungs haven't shown much progression. He said that (not so) "unfortunately" the tumors are SO SMALL that they can not do a biopsy to get a piece of them. They need to have a piece of those tumors to be able to build the correct receptors and grow them in the lab. I think that if we can set our goal to keep those tumors SO SMALL that they can never get to them--we're set!
The place with the best clinical trial is probably in Charlotte, NC. We have a call in to the doctor there. The same trial is in NYC but we think NC would be easier. NIH is not doing this type of work right now. We're not sure if the trial is open for patients yet...so I don't have much information on it. NIH said to try this other clinical trial which is much safer than wiping out his immune system. We agree.
So, that is all we know until we get Cl. Trial information. Bobby & I are happy...even since last night, I can tell that he is realizing slowly what we learned yesterday. He was so worried about the scans showing something new. The doctor really made him feel better about the chances of that happening...and a plan if it does. So, Bobby is making plans to go back to work which will do him good. I hope to hear from NC today..I'll call again now and leave ANOTHER message!
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