Time Flies

I can't believe it has been a week since we came home from the hospital. Bobby continued to improve daily throughout the week. By about Thursday, he was feeling much better. The dreams have subsided but he isn't sleeping the best. The vivid dreams are part of the IL-2. He isn't happy about the Hickman catheter. It is a real pain in the neck for him (literally). He is having trouble keeping his dressing on. Because it is on his chest/shoulder, it stretches and pulls the dressing. We change it every day or two (instead of weekly which is required). I am not noticing that he is as short of breath as he was earlier in the week. He isn't as grumpy either! His skin is improving too. The IL-2 causes dry and peeling skin. We tried several products and finally found one that works great. I believe that today, he won't even need to use it. Since he is feeling better, he may appreciate some phone calls this week. I would probably recommend calling the house instead of his cell phone (long story). The short version is that he is using a new cell phone that will eventually become our son Dan's phone number. Dan, is using Bobby's old phone until they swap numbers. Once they swap, Bobby will have his new phone with his old number.

We had a change of plans as far as treatments go. We had planned on going back to Hopkins on Tuesday. They changed it to the following Tuesday, and now backed it up to Friday. I guess plans could still get moved around. We'll just be ready to go when they tell us to be there. Bobby is dreading those days in the hospital. It is hard to know ahead of time that misery is just around the corner. We know what to expect-which relieves the unknown but confirms the unpleasantness of it all.

I will try to get some more pictures posted. I still have some from the hospital, and others from last week. Time goes by quickly. We appreciate everything that is being done for us...from many friends & family. We couldn't do it without all of you! Be back soon...