We received a call on Friday around 5PM from North Carolina. Due to an overwhelming need for patients to get into this clinical trial, they moved Bobby's start date to Sept. 15. We also decided to change the dates of the tests from this coming Tuesday to the 26th. We had planned to drive down Monday & return Tuesday night late so we were back before school starts (Wednesday). Now, we won't have to drive back late & we'll still be home for Wednesday. Also, since his start date was changed, Julie will be able to go to her horse show that first weekend in September. She hasn't shown her horse all season (she gave up show season so that the family could take "The Big Trip!") There is one show left--and we were going to have to miss it to be in NC. Everything is working out very well.
The first question we asked was, "Why was Bobby bumped back 2 weeks-instead of another patient." They were very nice and said that they (doctor & staff) had discussed this issue prior to moving the dates. She said that, in the time since we got into the trial, other patients have come in that are needing in this trial due to severe situations. The doctor felt that Bobby's disease progression was slow and that 2 weeks was not an issue. Unfortunately, there are patients that are far worse. Bobby agreed that 1)as long as he would still be guaranteed a spot in the trial & 2) if it might help someone in greater need, he was also comfortable waiting for 2 weeks.
Things we haven't even asked for are getting taken care of for us.
Bobby surprised me with a Corel Photoshop program for my new laptop-with which he also surprised me!
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