NIH called at the end of the week. Bobby will be starting the clinical trial the week after next. We feel very fortunate that all of the pieces fit perfectly. HE'S IN!!! I'm so happy for him...and the rest of the family feels a huge sense of relief that this is all working out so well. We know who to thank for all of this.
Wow, I fixed the typing mistakes. Sorry!
OK, so..things are set for Bobby's next visit to NIH. Next week will be his first visit to start the clinical trial. He goes to NIH for the apheresis. They will start 2 IVs and he is hooked up to a machine. The machine takes his blood and separates it. NIH will save some of his white blood cells for the trial. They will do this again a few more times. It takes 2.5-4 hours. From what we've read, it is not going to be an easy procedure. You can't get up. The IV catheters are large and can be uncomfortable. They put pressure dressings on after they remove them. It can cause bruising. Bobby isn't looking forward to this visit...but it is the beginning of the trial which is exciting. After we get through this day, it will be much easier. He is a little stressed out about this visit...He'd appreciate any support. After this visit, he will go down every 3 weeks for a vaccine. Those visits are quick and short.
Other news...we took Julie and Dan to the dermatologist. He was most concerned about Julie and told her NO SUNBURNS--EVER! Her fair skin and Blonde hair. She has several spots that we will watch. Dan has a birthmark that we've been concerned about but the doctor wasn't (whew). Lindsey needs an appointment and we'll be set.
Bobby is starting back to work full duty this week. He flies on Wednesday. Our schedules will be crazy for the next two months. We've been working around my schedule since he has been on 8 hour days. My schedule is crazy this month. I'm working all over the place. We'll see if it is easier to just stay on night shifts instead of switching all around. I am tired all of the time though. What's new.
Julie just got back from Canada. Her trip was great. She had a wonderful time. I'll do another post with pictures of that trip. Lindsey is planning her trip to Germany. She is making plans to see our good friends, the Hedke's, who live in Germany. Lindsey will be there for 2 months this summer. This will be her 2nd trip there. She is very excited. She knows where she is going and has done it before...so there is alot less stress. Too bad she doesn't get a 2nd time around discount.
That's all that is going on here...I'll keep things up to date when there is anything going on.
Thanks for visiting!
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