These are the last times Bobby and I had pictures taken together.
Sharing our family's journey in the battle against a beast - melanoma. Bobby's hope is to prevent others from fighting the same battle by sharing his story and teaching as much as possible.
Wednesday, January 30, 2008
I found the picture...
Monday, January 28, 2008
Dinner/Game night w/Friends Clay & Teresa
Our wonderful friends Clay and Teresa come over for dinner tonight. It was our "Christmas Dinner". We are thankful that they were willing to wait until now, considering the circumstances. After dinner we played a game called Sequence. That was fun. Of course, the "ladies' team" won the game. Well, we won the second game. The men won the first one.
Miranda plays with her new toys. She had played Sequence with us and was GREAT at it. Miranda likes to draw and got a lap tray that she can take in the car to draw on. We hope you like it Miranda!
Sunday, January 27, 2008
More Pictures (from Christmas) of Friends & Family
Saturday, January 26, 2008
A Day With the Doctors
Bobby will miss Katie for the next 3 months!
1:00PM Dr. McCormack (Oncologist): This was Bobby's first visit with an oncologist. Dr. McCormack was wonderful. He spent a very long time with us and took extra care to answer any questions we had. He was honest and took his time and was very understanding. We aren't the first young (wink) couple to sit in front of his desk fearing for our future.
He presented the facts:
1. He wants Bobby to be seen by an oncologist in Baltimore at John's Hopkins. This oncologist specializes in melanoma. Dr. M felt that Bobby would benefit by seeing him since the melanoma was on his face. The surgeon took the recommended 2cm margins for the excision but for the thickness of Bobby's melanoma, that may have been a little conservative. He just wants to be sure. He wants to make sure that the doctor at JHU doesn't want to do chemo or radiation. We will have the biopsy slides sent to JHU and read there--for another 2nd opinion. This appointment may take a few weeks to obtain.
2. With Bobby's depth of melanoma, being a male, age 40, and without spread to the lymph nodes, the stats say he has a 50/50 chance that the melanoma will recur. 50/50
Should it come back, melanoma can show up on the liver, in the lungs, pancreas, skin, brain, or anywhere it desires.
3. He wants to see Bobby every 3 months to check his lymph nodes (for lumps). He wants a yearly PET Scan for the next 3-5 years. And, to follow the recommendation of the doctor in Baltimore. Perhaps Interferon for a year-which is no fun. Bobby may not be a candidate for it though...his melanoma may not have been bad enough to need the chemo. We'll be praying.
That's about it--UNTIL WEDNESDAY. We go back to Frederick to see the ENT doctor. He has a fistula that is still draining "spit" continuously. We'll see if the doctor has any wisdom about that because it is a pain for Bobby.
Friday, January 25, 2008
We finally got the pictures
The last time we had pictures taken was at Donnie's wedding in 1996, shortly after our son Daniel was born. Of course Bobby looked stunning and I looked like a mother cow. (Because I was). These new pictures brought mixed emotion for Bobby as the new scars are something that is difficult to accept. We talk about how even though we know the scars will fade, and they are amazing proof of saving his life, we understand it is hard to accept that they will be there forever. It is amazing how well the scars are healing. We rub scar stuff into it a few times/day. I reassure him often that in a few months...he will be surprised at the progress he has made. And, of course, I will make sure to capture it all digitally! Lucky him! I'll add pics in a bit...we have some stitches to tend to.....
Thursday, January 24, 2008
Thursday
Anyone an expert on OLD stitches? I was rubbing some scar oil into his scars this morning and we pulled out the tail of an old internal stitch that had been lingering at the skin. There is another area where it seems as if there could be another one. This happened a few times a while back, but now it has been a while since we've seen any. I'll add a pic when he gets up. (OK, well he has been up but we've been busy) -pic tomorrow!
P.S. In case you missed the post from Wednesday 1-23: THE LATEST BIOPSY RESULTS ARE IN AND WERE BOTH BENIGN. NO ATYPICAL CELLS!
Wednesday, January 23, 2008
Let's Eat Cake!!! More Good News!
Wednesday
The kids are in school...at least until 2:30. Enough time for a few loads of laundry. And, I do have to work tonight. I'll sleep later. For now, I'm enjoying the quiet and my cats.
Tuesday, January 22, 2008
The drive home-Tuesday
An attempt at "Moblie Blogging"
We traveled to Fairmont, WV for a viewing Monday night. Although it was under unfortunate circumstances, we were happy to see our good friends Joe & Cindy.
Sunday, January 20, 2008
Rose's Broccoli Casserole
2 pkgs. (10oz.) frozen chopped broccoli
3/4 c. chopped onion
Combine:
2 eggs beaten
3/4 c. mayonnaise
1 can cream of mushroom or celery soup
Blend with above 3 ingredients: 1 c. shredded sharp cheese
Mix:
All of the above items and put into a buttered casserole dish. Salt/pepper to taste.
Top with:Herb bread crumbs/cubes mixed with 1 stick melted butter or oleo
Bake:
375 degrees for 45 minutes
Note:
For a one-dish meal, add cubed chicken breast cooked off the day before!
Saturday, January 19, 2008
To answer a few questions...YOU asked...
Bobby says they are sore. He's not complaining after the toll the last biopsy is STILL taking. Now, that one, he is STILL whining about. That's OK...he's allowed to whine if it is over 3 or 5 stitches OR 56 stitches! We're used to whining around here.
The mood here is still "roller-coaster". I (Donna) have a cold and am feeling kind of run down. I worked last night which went well and so far, I'm home "on call" tonight. That will help. Perhaps being extra tired, being sick, and working would make you feel crappy? That would have been until I got Aunt Rosie's card today...and then, I felt more like smiling. Thank you Aunt Rosie. She also sent me her recipe for the casserole. I'll post it on a sidebar! Enjoy!
If I had thought about it BEFORE they were gone...I'd have taken pictures of the mole that the doctor removed. I would have shown you the two that were side by side and looked "similar" but one was suspicious and the other was "normal". The one on the right (below) is just a piece out of the existing birthmark. He didn't take the entire birthmark......yet.
**Right Shoulder Biopsy Site **(left pic) **Right Upper Back/Shoulder Site**(right pic)
Friday, January 18, 2008
Friday...
It was an AC&T truck carrying 2 Port-A-Potties. From the bottom side (pardon the pun) on the one on the left trailed a ribbon of white unrolled paper! When he was on the interstate, it would tear off and float around, but on the slower road, it got longer and longer! A once in a lifetime sight!
We got some snow today-and a visitor
Bobby's good friend Harold came to visit him today. Lee was supposed to come but the weather was not cooperating. Bobby was thankful that Harold made it up here. Donna is trying to figure out why she didn't think to grab a picture--I'll have to figure out something tomorrow.
Thanks for coming to visit Harold!!!
About 3" total by tonight.
And this is Maybelline. She was being cute in the fruit basket (good thing all of the fruit was taken care of...see anyone hiding in the background?
Wednesday, January 16, 2008
And the Final is in....
Then, the best part of our day was meeting our good friends Paul & Glenna for brunch. Thank you for the meal and for a great time this morning! Bobby & I had a wonderful time (and I can speak for Paul & Glenna that they did too).
More of Wednesday...
The day just kept getting better...
Shortly after Bobby and I got home, Bobby's father came by with a hard earned treat. Bobby can not begin to express his gratitude to his dad for the load of wood that he brought. The dump truck was piled full--and our stove was dead empty and very cold. Thank you Pap Pap from all of us. There is nothing warmer than having that stove cranking on a blustery day. It wasn't long until smoke started billowing from the chimney.
Tuesday, January 15, 2008
It wasn't TOO bad (from Donna)
Bobby said he didn't sleep much here. He was up a few times. His drain hole has sealed over and isn't allowing Darla's spit to drain. That is painful. The fluid builds up under the tissue and makes it way from under his ear up and around in front of his ear and up to the top where Darla used to be. I used to be able to get it draining but the last 2 days it has healed more and won't drain. Bobby thinks Dr. Yoon will fix this issue tomorrow morning. Don't worry: I'll be sure to capture all the details and post it ASAP "How the Doctor got Bobby's Spit to Drain" to be released Wed. afternoon! Something to look forward to tomorrow!
Good Day to everyone for now. Perhaps we will say goodnight later and have some pictures to post before bedtime. Keep him in your prayers tonight as we should get the FINAL pathology reports tomorrow. Also, he will get two more biopsies done--which stinks. He gets pretty bummed out about that. It is like starting the process all over again. Each biopsy has the potential to come back as Melanoma. That pretty much sucks to put it nicely.
Monday, January 14, 2008
Worried...
Sleep tight, I love you!
Sunday, January 13, 2008
Melanoma
This picture was taken in October on Bobby's 40th Birthday. The spot on his cheek had been there since the beginning of summer. It wouldn't heal, it slowly got larger and because it didn't look nice, we finally made an appointment to see his doctor. We never once considered that it was skin cancer. We didn't have the knowledge we do now, it was a hard lesson learned.
This is the spot on his cheek
Melanoma doesn't always look like this, it can have many appearances.
Melanoma is the most serious type of skin cancer. It begins in skin cells called melanocytes.
Melanocytes are the cells that make melanin, which gives skin its color. Melanin also protects the deeper layers of the skin from the sun's harmful ultraviolet (UV) rays.
When people spend time in the sunlight, the melanocytes make more melanin and cause the skin to tan. This also happens when skin is exposed to other forms of ultraviolet light (such as in a tanning booth). If the skin receives too much ultraviolet light, the melanocytes may begin to grow abnormally and become cancerous. This condition is called melanoma.
In men, melanoma most often shows up:
on the upper body, between the shoulders and hips
on the head and neck
In women, melanoma often develops on the lower legs.
In dark-skinned people, melanoma often appears:
under the fingernails or toenails
on the palms of the hands
on the soles of the feet
Saturday, January 12, 2008
Special Thanks
Friday, January 11, 2008
Daily Progress
The scars are getting much better. The one by his ear is barely visible. If you didn't know it was there, it wouldn't catch your attention. The one on his cheek looks much better now that 1/2 of the stitches are out. When the rest of the stitches come out, it will continue to look better! He has feeling over most of it, just not around his earlobe. That may or may not come back.
We made the appointment with the oncologist in about 2 weeks. We will be able to get alot of our questions answered and be able to find out what else might be beneficial to help prevent recurrence of the Melanoma. Unfortunately, this type can return. (More on this later)
I'll find some pictures to post...and call it a night. Thanks for signing the guestbook...it is fun to see who has been here! We hope all is well with each of you...
Thursday, January 10, 2008
Thursday...
We all ate dinner together tonight. Donna made stuffed manicotti and we had some of Aunt Rosie's fruit salad. It was nice to sit together as a family and enjoy our meal. Some Cold Stone ice cream would have been nice for dessert--but, gee, we don't get any of that.
I called to make an appointment with the oncologist and we're still waiting for a call back. We are both anxious for that appointment as it will fill in many of the questions we have and give us a glimpse into the future. We still should be praying that things will continue down the current path!
Bobby wanted to add a GUESTBOOK to the Blog...he hopes everyone will sign it and we will know who has visited. The map helps but he'd love to know who's been here! Thank you for all of the great emails and cards--and calls. He is getting to hear from many friends (and family).
Wishing you all the best...for now-Bobby & Donna
Finally...some quiet time!
In the last 2 weeks, we've been able to spend time talking about the things that matter most.
-We've had many heart to heart conversations and have enjoyed many of the events we remember over the last 20+ years. And, then, it is 2:30 and the kids are home from school, and the fantasy ends. The gripes start, the whining and the complaints flow. There is homework to be done, after school events...and then we realize...things are getting back to normal! See you at 0630 in the morning...like it or not :(
Pictures...
Lindsey holding Maybelline and Lexi
Wednesday, January 9, 2008
Chicken Broccoli Casserole
Tuesday, January 8, 2008
REJOYCE! and BELIEVE IN MIRACLES
Bobby's last words last night (before I fell asleep on the keyboard) were, "Cautiously optimistic." Yes he was. Understandably so - without a doubt.
Today, we had to see the ENT doctor a day early because of the increased swelling and pain Bobby had been having. The visit had been scheduled for Wednesday but we had to move it up. I think it was a good thing because as Wednesday drew closer, so did the knowledge of the pathology reports we expected to receive. Today was the day.
Although preliminary, the biopsy results came back. Dr. Yoon read us the report (in words that we could understand):
- NO CANCER CELLS IN THE LYMPH NODES
- NO REMAINING CANCER IN THE CHEEK
The biopsy results are negative on the preliminary report. I can not say anymore than what Aunt Rosie said but, "Praise the Lord!"
With this, and a day of unbelievable emotions, we BELIEVE IN MIRACLES.
...to be continued as not to interfere with the impact of the above information.
Emotions...and more of the story
I told Bobby tonight that what he's gone through isn't just STRESS. Stress can be good, stress can be bad. Receiving a diagnosis, cancer of all things, with the implications of Melanoma and the severity of his situation doesn't just cause stress. It causes one's body to react with a response of survival and desperation. Even with the report being nothing short of a miracle, even the good news is hard to digest. For Bobby, it is slowly sinking in. For Donna, I'm trying to convince him that every day will be better, the news will slowly sink in, and when he is ready--I'll be holding the champagne, balloons, and ready to celebrate any way he feels up to. Until then, I think I'm plenty happy for both of us.
Let's see, other news. Bobby got out 1/2 of his stitches on his cheek (thank you Katie). The stitches around his ear were removed by Bobby's private duty nurse in the comfort of his home. Not that Katie doesn't remove stitches well...but, let's just say that there are fringe benefits to having your own nurse at home, alone.
The scars are improving daily. I'll post some pictures...(sorry, none of the stitch removal). The doctor said the swelling below his ear is scar tissue and "spit." (Doctor's words, not ours) Bobby is still having trouble eating. The taking is very much improved. It sounds like it will take a while for the swelling to go down. He was doing well tonight until he ate a piece of peanut butter pie. Now, with ice on his jaw, he is grumpy. I'll take grumpy anytime...no matter what. We'll celebrate our 20th anniversary this year...when we look back at what we've been through in the last 20 years, the next 20 will be a PIECE OF CAKE!!!
Until we can write back to everyone who has sent emails, called, and chipped in-- please allow us to say THANK YOU here-for now. I have a feeling, we'll be spreading thanks for quite a long time.
After the stitches are out...and 1/2 of the ones on his cheek
and NO CANCER
Comfort, Healing, Miracles
Believe in miracles,
if you believe in God.
Follow the Lord and
the Lord will touch your life.
Oh Lord, let there be a miracle.
Bless us with Thy mercy.
We thank Thee,
oh merciful lord,
for all the many graces,
blessings and gifts
you have given us.
Guide us in all we say and do
and strengthen us to accept
our pain and suffering
as Jesus did for us.
*Amen*
FJM ~FJM
©2007 F.J. Mahoney
THANK YOU!
Goodnight...whew! Exhaustion has set in...more in the morning.
Monday, January 7, 2008
Monday - Post Op Day 5
YIKES, he just caught me sleeping while typing this on the laptop...which is becoming easy to do. It is bedtime, but I'd love to sit up and type.
Tonight, although it is something we try to do routinely, we all sat and ate dinner together as a family for the first time in a while. Unfortunately, Bobby was pretty miserable throughout the meal. Thanks for hanging in there!
Bedtime...Sunday
This week, we will know the results of the pathology reports. He should also probably get his stitches out. We will be able to start looking at the near future and what it holds to combat the Melanoma. I will have to go back to work some time this week, something I can not even imagine. It will be one of the hardest things I've ever had to do. Even when I returned back to work from having our children, it wasn't as hard as this will be. He was there, with each of the kids, taking care of them until I got back. He told me he'd come to work with me. Hummm, I'll have to figure out how to pull that one off.
Goodnight to all, sleep tight! I've got my angels tucked in for the night.
Bobby reading his Harbor Freight magazine (his favorite subscription)I can't say who.... (no makeup)! (13)Ahhh, peace and quiet....And a 17 y/o with a cell phone...did I say quiet? Time for bed!
This is The Ditto
Sunday, January 6, 2008
Sunday Night...almost bedtime.
OK, tonight Aunt Rosie and Uncle Ron stopped by to check and see if there was anything we needed and to offer support. It was good to see them. Bobby had a rough evening but came down to visit with the family despite his discomfort. Thanks for stopping in Aunt Rosie & Uncle Ron--we love you!
Bobby doesn't know it yet, but Aunt Rosie is bringing dinner over on Wednesday!! Thank you! It will be a perfect day to have a meal because we have several doctor's appointments that day. Three Cheers for Aunt Rosie and Uncle Ron!